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It's
true, one's life changes forever when they hear those three little
dreaded words - YOU HAVE CANCER.
For me, after the doctor said those three words my brain went into a
fog. The doctor told me I had infiltrating ductal carcinoma,
Nottingham grade 3, 1.8 cm and lymph node positive for metastatic
disease 2.7 cm. and the HER-2 was a triple negative. Because of the
aggressive nature of this triple negative breast cancer, I was to
undergo adjuvant chemotherapy as per Eastern Cooperative Oncology
Group clinical trial E5103, a national phase III clinical trial
evaluating duxorubicin, cyclophophamide, paclitaxedl and bevacizumab
as adjuvant therapy to reduce chance of breast cancer returning.
The planned therapy was to potentially take one year to complete.
Side effects were to include nausea, vomiting, immune suppression
with increased risk of infection, significant fatigue and increased
risk of bleeding, mouth sores, hair loss, etc. It was as if all
those words of explanation went in one ear and out another, as my
mind was was now calculating all I felt I needed to do to get my
life in order in case I didn't make it through the operation or
treatments. I started to be concerned about who would care for my
parents and uncle who were living with us, as my mother had breast
cancer too and was fading from dementia. My uncle and father had
dementia too and my uncle wasn't in good health at that moment in
time either. My 18 year old daughter would be graduating from high
school in May and I found myself begging God over and over to at
least let me live to see my daughter graduate from high school.
I took the large cancer booklet home with me and collapsed on
the bathroom floor and sobbed my eyes out. I never questioned God
as to 'why me', but I knew I wanted to live longer to see my
daughter graduate, get married and have some children. I didn't
want to miss those events, and I didn't want her to go through those
years without having me around for her. I tried to quit feeling
sorry for myself and we scheduled the surgery (bilateral mastectomy)
and removal of the lymph nodes under my left arm for October 21,
2010. The Lord saw fit to take my mother to heaven the day before
my surgery (October 21, 2010). I had been at a meeting that morning
for our foster child and came home to get mom up and out of bed for
the day, but when I entered the room I knew she would depart from us
shortly, so brought my father in to say goodbye to her. She went
peacefully and I believe God took her then, as He knew I wouldn't be
able to lift her out of bed after my surgery. A week after the
surgery, October 26th, I went in to see the surgeon and he found a
hematoma and put me back in the hospital right away. A couple hours
later removed a pop can full of blood. The next day we had mom's
visitation, and the next day we had mom's funeral and my husband and
I sang at her home going, and the next day we had her burial. I was
exhausted! Then, after healing for a few weeks from the operation,
the chemotherapy started. Aaugh!!! Who ever invented the stuff may
have been a genius, but it sure is nasty stuff!!! The
medication to deal with the nausea and pain however (Gabapentin,
Dexamethazone, Lorazepam, Oxycodone, etc.) worked for the most part
pretty well. After the first few treatments I didn't want to
continue, it was horrible. I received Adriamycin (doxorubicin),
cyclophosphamide (cytoxan), taxol (paclitaxel) and Avastin (bevacizumab
- the clinical trial drug). After each treatment I had to go into
the clinic to have a neulasta shot 24 hours after the treatment
which forces the bone marrow to reproduce faster as the drug kills
everything good and bad. This shot made my bones feel like they
were being crushed. My family urged me to keep going and through it
all, the doctors and nurses have all been very kind, gracious,
understanding, encouraging and helpful. The side effects of aching
bones and muscles, nausea, hair loss, ringing in the ears, throat
sores, food tasting like cardboard, etc. weren't pleasant at all,
but I have tried to stay focused on getting better and keeping a
positive attitude through it all. I don't know how anyone could
ever get through any of this without having Jesus as their Lord and
Savior.
Financially it has been a little hard to cover all the bills. Even
though my husband's job has good insurance coverage, it doesn't
cover all of the medical expenses. Just 1 bag of one of the chemo
drugs cost $12,000.00. I don't know how people who don't have any
insurance coverage pay for treatment. I applied for social
security disability to help pay medical bills, etc. while undergoing
treatment, but they turned me down saying that with extreme fatigue
that I still should be able to work at a desk job. My oncologist
even wrote them a letter, but they still didn't realize that with
that type of fatigue you can walk from your bed to the kitchen and
have to sit down, that it's hard to breath and hard to swallow,
etc. Our government isn't as sympathetic as our medical
professionals, that's for sure.
I recently finished chemotherapy, and aside from the 3 types of
chemo drugs they had me on, I was also on a clinical trial which
turned out to be the real drug, so hopefully it will have helped
knock out the cancer. The most recent PET scan showed that I am
presently in remission, and we pray that it stays that way. Ever so
slowly my hair is coming back in (white) and I definitely look like
the grandma that I am and thankfully food doesn't taste too bad
anymore. I am extremely grateful the Lord has given me the
opportunity to be here longer and my priorities in life have
definitely changed and I live each day so thankful that I am here to
be with my family and friends!!!
Please keep us in your prayers. I have a small blood clot in my
ankle and am battling lymphodema, undergoing physical therapy, and
if I stay in remission after 3 months then will be facing
reconstructive surgery and dealing with drainage tubes again.
Sigh! If you're able to help financially, we thank you. Below are
links to help me and agencies who help cancer patients in times of
great need.
Thank you and God Bless!
Carolyn Larson Glover
www.cancercare.org
Hope Chest
Pink Ribbon Riders.com
Unity Hospital |
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